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World’s Biggest Birthday Bash
And YOU are invited to be part of the celebration! turning this day into one of joy. “Birthdays should be joyful occasions when parents celebrate the accomplishments their children have made in the past year, often talking of how they’re “growing up too fast”. For us, that’s not the case. For our family, each birthday is a painful reminder of the decline we will continue to see if something doesn’t happen soon. Turning 5 years old should not be so bittersweet, and I know come November 16th, the tears will flow. We made it a point early on not to cry in front of our children, especially Eliza’s big brother,…
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Too Late
This will be a short post today because I have written in-depth about Saving Eliza before in my post The Last 365. When I wrote the last blog, her parents were still hopeful. They had months to raise the remaining funds and Eliza was not showing any symptoms of degeneration. They began a social media challenge (#sing2lines) in order to raise awareness and funds. If everyone reading this gave $25, we could save her life today. But today I was heartbroken anew. An article on People.com shared that she is losing words. I cannot imagine watching my child be slowly erased by a missing gene, knowing every step backward is…
